Join Our Team
Here is your chance to make a difference!
We are a respected patient advocacy organization with over ten years of experience working in the rare epilepsy space and are looking to grow our team. We hope you’ll learn more about what we do and submit an application to join us on this journey.
Open Positions
Click on position to open the job description.
Contact us
Contact us
Our Story
Developmental and epileptic encephalopathies (DEEs) are a varied group of rare, catastrophic epilepsies. Characteristics of DEEs include seizures, behavioral disturbances, and/or EEG abnormalities that have negative effects on cognition and behavior. DEEs are often progressive and highly resistant to treatment.
What began as a family’s personal quest to understand a devastating diagnosis has evolved into a global initiative — one that brings curated information and resources to families, promotes the advancement of improved care and hosts research efforts to improve the quality of life for all DEEs.
Decoding Developmental Epilepsies (DDE) is a 501(c)(3) nonprofit organization and the successor to Wishes for Elliott.